So, we had a nice, relaxing, quiet Sunday. We didn't go anywhere, and barely made it out of the house at all! My poor man was just not himself Saturday or Sunday. Finally figured out he was constipated Sunday morning, gave him an enema and he was a whole different baby after that! We were all tired from the busy end of the week that we all just stayed in and watched movies all day. Gotta love them days!
Today, however, the beginning of the long week starts. Most of you know that Lucas was supposed to have surgery a couple of Monday's ago, but ended up getting sick on the Friday before and could not have surgery. Thank God it was just a mild infection in the trach and we caught it early, so with some antibiotics, breathing treatments and a little bit of oxygen, he was back to his happy self by Monday! We got the ok to reschedule and surgery is now going to be this Friday! For those of you who don't know, we're going to be correcting his foot and doing one other procedure at the same time. Little guy is going to have an epidural for pain management so we'll have to stay in the hospital over night. His little foot is going to have three steel rods protruding from his skin and then a cast over that. (Sounds gross, I know!) The doc says in 3-4 weeks the rods are going to fall out and the foot should be fixed. They sure can do a lot with medicine these days! It already looks so much better than when he was born with just the casting and the special boot he wears at night!
I got the "go" for surgery this morning from his pediatrician. I don't know if I told you yet, but we LOVE our pediatrician. After looking him over, she started playing with him and was trying to get him to sit up for her (but he really didn't do it, he's still unsure of doctors and nurses; I swear they can tell already). Then she picked him up and gave him the biggest hug and told him how proud she was of how far he'd come. It was too sweet, I almost teared up watching her tear up at him; you can really tell how proud she is of him. (And so am I little guy!)
So, I think Lucas may be having seizures again! :( I really hope that's not the case, but I'm really not sure this time around. His first three seizures (when he was a month old) were more like twitches. His left arm and leg just came up and down, he looked like he was having the hiccups. Then the seizure he had over Thanksgiving was more like a "jackknife seizure" where his body basically folded in on itself. One night while checking on him before I went to bed, I found his eyes jumping around and he just started spitting all kinds of stuff out of his mouth. He did the same thing to me the other day when he was asleep and I was taking him out of the car and putting him in the bed. I'm not completely sure that these were seizures and not just his REM sleep, but I called the doctor to be sure. You would think that the third time I called them and told them I thought he was having a seizure they would've called me back, but no, I still haven't heard from them. I am going to give them a piece of my mind when I go there on Thursday. (This isn't the first time they've ignored my calls!)
I already tried to schedule the next surgery to take the trach out. I feel like I'm rushing it, I hope he's ready, I know we are. I could probably put up one thing everyday that we can do without the trach from now until the trach comes out. So for today..
When Lucas' trach comes out, I can't wait to ... scrub the back of his neck!
Well I should be picking up the toys in the living room, but instead I'm going to bed. This mommy stuff is tiring! :)
BTW, funny Joshua incident of the day: I hear him coming down the hall half crying and calling out for me. I come around the corner and he's basically holding himself up on the couch trying to get to me. I look down and he says, I want my pants mommy. He had tried to put his big boy underwear on, but had both legs in one hole and couldn't get them off! I took them off and just about begged me to put them back on. I think he may be just about ready to potty train. Wish me luck! If I thought I was stressed before, just wait till we start potty training again. To say it went bad the first time around would be an understatement! This just might have to wait till after the trach comes out. OMG, the trach is coming out soon! I can't wait.
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